Welcome to Just Connie! The blog about a young girl living with Rett Syndrome giving you a real insight into our unique family lifestyle. In 2017, we are going to be posting daily all about Connie’s life. It will include what she gets up too, what we have been through in the past and the reality of what life can be like for us. In 1997, Connie’s Mum completed a diary for a whole year all about what Connie did … this was before there was any inclination that Connie may have a disability. Twenty years later, we are sharing this diary with everyone and comparing the life Connie had then to the life she has now. We hope that you enjoy her story!