On a normal day, Connie can be hard work but a Connie with very little sleep is a totally different ball game!
Connie’s neurologist referred her for a sleep deprived EEG to see if the ‘suspicious activity’ that was noted on her last EEG could show again in a clearer way. For most people, there is a higher chance of irregular brain activity showing itself when you are tired. Our instructions were that Connie had to go to sleep 3-4 hours later than normal and she had to get up 3 hours earlier which in our house means that we all go to bed later and get up earlier! The EEG itself is similar to the last one but instead of the different activities for Connie to do, the main part of this one involves actually going to sleep.
The most difficult part of the whole experience was definitely keeping Connie awake. She couldn’t keep her eyes open – it was like torture, nudging her every five minutes!
On the night before, we took Connie out in the car for a ride to her cousins, then around the one way system in Lancaster and finally to Morecambe to pick up a KFC before heading home. It was so hard trying to find ways of passing the time and it seemed that because we knew we had to stay up longer, we were even more tired than usual!
Connie’s normal bedtime is between 8 and 8.30pm so we aimed to keep her awake until 11. We only managed to keep her going until 10 – she was absolutely shattered and just could not keep her eyes open. She even seemed to be sleeping whilst standing at one point. The time Connie normally gets up varies day to day and can be anywhere from 6-11am! Recently, she has been getting up at about 8am so we decided to wake her up at 5. The morning turned out to be even harder than the night before! From 5-8am, it was a constant battle of keeping her going. Even Matilda (one of her favourite films) couldn’t keep her awake.
At 8am, we slowly started to get ready and at 9am we headed to Sainsburys for our breakfast – Connie perked up for this part of the day! She ate a junior breakfast, half a croissant and some extra bacon. There was time for a quick look around the store before we headed to the hospital for our appointment at 10.30am.
The easiest part of the day for us was that Connie had already been for an EEG before so she didn’t struggle with the whole idea of going into the hospital and being wired up. She was absolutely fine when she was getting all 21 wires glued to her head and acted like a pro. Luckily, it was the same lovely lady as last time!
The first part of the EEG was the same as part of the last one Connie had and involved really bright lights being flashed into Connie’s eyes. Then she had to keep her eyes closed (with the help of Mum) and count to ten (again, with the help of Mum!) The last part of the test was sleeping. Connie got onto the bed and all the lights were switched off. We took pillow and a fleecy blanket with us but we were convinced that she wouldn’t sleep. How wrong we were! She slept for the whole 50 minutes whilst we sat and watched her on two of the most uncomfortable chairs – we were quite jealous that she got to have a lovely nap after the night’s sleep we had! Once she woke up, she found it funny that she’d been asleep in the hospital room and sat nicely whilst the lady removed the wires from her head.
The results from the EEG will be sent to Connie’s neurologist and he will call us in to discuss them and let us know if any activity showed. Let’s hope we get some answers as to why this has all started happening! In case you didn’t guess, Monday finished with a very early night for the three of us – we couldn’t wait to get into our beds for a proper nights sleep!