Rett Syndrome

In the past we have had a few comments on our blog and YouTube channel asking for more information about Rett Syndrome so we decided to put together the basics of what we know about it! Rett Syndrome is a rare genetic disorder caused by a mutation in the MECP2 gene found on the X […]

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February Update!

Hello again! We are back! We took February off from posting to get a few things sorted and to refresh what we want to post about but here we are – we are back! We have had a few people ask about when we would be posting again and what we have been up too […]

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The iPad Debate – Why Connie Would Be Lost Without Hers

Recently I have seen a lot of discussion about iPads (and technology as a whole). Are they good for people to spend a lot of time on? What happened to the good old days of playing out? Isn’t it awful when you go to a restaurant and see people sat on them instead of talking […]

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My Journey as a Young Carer

I was 3 when Connie was born and for 2 years everything was pretty much as you would expect. Up until I was 5, nothing in my life was any different to anyone else. It was at this age that things started to change for Connie as her Rett Syndrome began to take effect even […]

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Young Carers & Adult Carers

Some people are carers as their job – they choose to be the ones who make it their mission to look after others. But some people grow up always caring for others whether it be their parent, sibling or family member – these people don’t have a choice it is simply what they have to […]

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Being a Sister VS Being a Carer

  Being a sister is without a doubt one of the best jobs in the world and I also have chance to be able to one of the people who cares for her sister. I am grateful that I am able to be both for Connie but over the years I have learned that there […]

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Our New Gadget!

At the end of last week we had a visit from ‘Telecare’ who came to see if they could help us out with anything in the home. For those of you that haven’t heard of Telecare before, they offer individuals, families and carers services that aim to help people stay independent in their own home. […]

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