Being a ‘Special Needs Sibling’

When you become a ‘special needs sibling’, you have to grow up – fast. All of a sudden, there is a new person in your home that needs a lot of extra help and care which naturally means that you have to start doing a lot of things for yourself. In both the best and […]

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Just Connie’s Year: Girls Day & New Purchases!

15th July 1997 I slept with Daddy but I woke up at 2am for about an hour! I went for a ride in the car today to Blakenly – both me and Jordan fell asleep in the car. We had lunch back at home then we went round to the local shop and sat on […]

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Accessibility & ‘Connie’s List’

‘Accessibility’ is defined as the quality of being able to be reached or entered; the quality of being easy to obtain or use and the quality of being easily understood or appreciated. It is a big discussion topic when it comes to disability but over the years we have found so often that accessibility is […]

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The Big Move Back to the Bedroom is Coming!

Connie has not spent a night alone since March. It appears that this is our new way of living and we all seemed to have become used to it. Currently, Connie sleeps in our parents bed with Mum most of the time or if Mum is away then myself or Dad step in. (Dad is […]

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Happy 3rd Birthday Elsie!

Connie woke up this morning extremely excited to be able to celebrate her little cousin Elsie’s 3rd birthday. If you have followed the blog for a while, you will know how much Connie loves a birthday celebration and she loves it even more when it is full of Peppa Pig and children’s toys! It was […]

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Just Connie’s Year: Dentist Time!

6th July 1997 I went down to Morecambe today with Mummy, Daddy and Jordan to buy some bits and bats for our holidays. Megan brought me a seal hand puppet from her holiday in Cornwall. I had a good sleep for two and a half hours before we had a barbecue for tea and a […]

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Connie & The EEG

Last Friday, Connie had an appointment at the hospital for an ‘EEG’. After all the changes that have been going on over the last four months with seizures and her Rett Syndrome, it was decided that an EEG would be the best option so that the Doctors could see if there was some other activity […]

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